The Disability History Association’s Statement on Anti-Racism

The murders of George Floyd, Ahmad Aubrey, and Breonna Taylor have sparked a firestorm of collective grief, anger, and protests against structural racism and the resulting systematic oppression and widespread violence. The Disability History Association (DHA) stands in solidarity with anti-racism activists and their fight for racial justice. We affirm that Black Lives Matter.

Our response to this moment demands a complex approach that is committed to both anti-ableist racial justice and anti-racist disability justice.

The rallying cry of the anti-racism movement, I can’t breathe—also the last words of too many Black people dying at the hands of police—emphasizes the ways Black disabled people’s health and well-being are disproportionately affected by white supremacy and social and environmental injustice. Chronic illnesses such as asthma, hypertension, and diabetes disproportionately affect Black communities. Systemic racism has created healthcare disparities through discriminatory diagnosis, institutional barriers, and lack of access. Structural segregation has also ensured that Black people are more likely to live in food deserts, areas without clean water or air, and high-poverty areas without access to green spaces. Moreover, Black adults often work in low-paying frontline jobs that expose them to greater occupational hazards and, thus, chronic illnesses or disabilities. Black disabled people also encounter law enforcement officials—including for welfare checks or during a mental health crisis—at disproportionately higher rates.

According to the National Disability Institute, fourteen percent of working-age Black people have a disability compared to Non-Hispanic Whites (11 percent) and Latinxs (8 percent). Furthermore, because both disability and race are determinants of socioeconomic inequality, Black disabled people remain one of the most vulnerable groups. Having a disability is costly, and ableism itself can severely limit disabled people’s economic opportunities. In the United States, to obtain disability benefits and health coverage, an individual has to prove they are incapable of work; at the same time, welfare programs require applicants to be employed, forcing disabled people to make difficult financial choices. These material realities can further exacerbate chronic conditions and delay/restrict necessary treatment and support. We have seen, time and again, the tragic results of these intersections.

The DHA recognizes the entanglement of racism and ableism, and that a multiplicity of historical processes created these conditions. We are aware of the ways that Black communities and Black disabled people have been targeted by the violent, racist, and ableist systems of white supremacy, in both the past and in the present. The legacies of U.S. racial chattel slavery remained entrenched in local policies, state laws, and federal legal decisions. They remained entrenched, as well, in the U.S. Constitution. Merged with eugenics, which gained remarkable popularity between the American Civil War and World War II, these oppressive forces have systematically targeted Black disabled people for institutionalization, immobilization, and violent interventions. Cases like those of Junius Wilson, a deaf man incarcerated in the Jim Crow South for a crime he did not commit, were not uncommon. After the Second World War, eugenics persisted in old and new forms. Eugenic philosophies and practices permeated debates about genetic counseling, public education, and the provision of healthcare, perpetuating the constitutive claim that white, able-bodied people were superior to Black and Black disabled people.

The impacts of these racist and ableist projects persist into our current moment. As a lethal and disabling pandemic grips the world, disability and Black communities across the United States have been disproportionately impacted by COVID-19. The deadly combination of systemic racial injustices, spatial and economic discrimination, lack of equitable access to healthcare, and institutionalized ableism have proven especially dangerous for Black and disabled people. Not only are Black people more likely to be hospitalized for COVID-19, they are much more likely to die from COVID-19 than any other group. In New York, for instance, the COVID-19 death rate for Black populations was as high as 92.3 per 100,000 population, which is substantially higher than death rates for Hispanic/Latinx (74.3/100,000), white (45.2) or Asian (34.5) populations. Meanwhile, disabled people—Black and otherwise—have faced shortages of life-sustaining medications, been targeted for abandonment through resource scarcity protocols, and had do-no-resuscitate orders (DNRs) issued without their consent. There is also growing evidence that people who survive coronavirus may also have long-term disabilities, which are also likely to have disproportionate impacts on the Black community.

Despite these historically consequential connections between racism and ableism, Black disabled people’s stories have been erased from the annals of history. As activist Vilissa Thompson has asserted, without Black disability history, the political and societal developments that many of us take for granted might not have occurred. We need to spotlight histories of prominent Black disabled figures — such as Harriet Tubman, Fannie Lou Hamer, and Mary Church Terrell — and also acknowledge the roles many Black disabled people have occupied in the pursuit of justice. Members of the Black Panther Party not only aided disabled activists during the 504 sit-in protests, but also created networks of healthcare centers and food programs to address the disabling effects of medical and educational racism. Black and Latinx activists contributed significantly to twentieth-century efforts toward deinstitutionalization. And Black, disabled activists have been at the frontlines of American Disabled for Attendant Programs Today (ADAPT).

The DHA promotes the study of disabilities throughout history. We are committed to advancing Black membership and leadership within the DHA, and to cultivating partnerships with Black institutions and organizations. Our mission is to foster various perspectives, representations, and policies on disability, including the ways that disability and race are intertwined. We commit ourselves to anti-racism and the dismantling of white supremacy by:

  1. Critically reflecting on the DHA’s practices in order to identify the ways in which it participates or is complicit in the racist and ableist structures of higher education. This includes an examination of how we can dismantle implicit bias and systemic oppression in practices and uphold the DHA’s mission and anti-racist, anti-ableist stance. 
  2. Supporting, promoting, and amplifying historical work by Black and Black disabled people. We also strive to promote the documentation and dissemination of information about the history of Black disabled experiences, the intersection of racism and ableism, and Black disabled activism and resistance. We will continue to use our social media to elevate Black creators’ hashtag campaigns, including #BlackDisabilityHistory and #BlackDisabledLivesMatter.
  3. Supporting, promoting, and amplifying research into the historical intersections of race and disability, as well as the intersections between past and present experiences of being Black and disabled. We will continue to use our blog, All of Us, to encourage conversations about the connections between past and present Black disabled histories.
  4. Seeking diverse leadership, membership, and partnership in our organization. We commit to actively striving to recruit BIPOC historians of disability to join the DHA and to positions of leadership within the DHA. We also commit to inviting BIPOC historians to be interviewed for our podcast series, submit articles to our blog, and apply for our awards.

Readings on Disability & Race

Christopher M. Bell (ed.), Blackness and Disability: Critical Examinations and Cultural Interventions. East Lansing: Michigan State University Press, 2011.

Liat Ben-Moshe and Sandy Magaña, “An Introduction to Race, Gender, and Disability: Intersectionality, Disability Studies, and Families of Color,” Women, Gender, and Families of Color 2.2. (Fall 2014): 105-114.

Susan Burch and Hannah Joyner, Unspeakable: The Story of Junius Wilson. Chapel Hill: University of North Carolina Press, 2007.

Chris Chapman, Allison C. Carey, and Liat Ben-Moshe, eds., Disability Incarcerated: Imprisonment and Disability in the United States and Canada. New York: Palgrave, 2014.

Arida Imada, “A Decolonial Disability Studies?Disability Studies Quarterly 37.3 (August 2017).

Angel L. Miles, Akemi Nishida, Anjali J. Frober-Pratt, “An Open Letter to White Disability Studie and Ableist Institutions of Higher Education,” Disability Studies Quarterly 37.3 (August 2017).  

Therí A. Pickens, “Blue Blackness, Black Blueness: Making Sense of Blackness and Disability,” African American Review 50.2 (Summer 2017): 93-103.

Ellen Samuels, Fantasies of Identification: Disability, Gender, Race. New York: New York University Press, 2014.

Jorge Matos Valldejuli, “The Racialized History of Disability Activism from the “Willowbrooks of this World,” Activist History Review , Oct. 2019

Resources on Disability & Race

Museum of Disability History virtual exhibit on disability & the African American experience: https://www.museumofdisability.org/disability-and-the-african-american-experience/

“An Open Letter to the Disability Community on Why Black Lives Matter and Allyship”  letter to disability groups about Black Lives Matter

 ​”Ramp Your Voice!” “ an organization dedicated to issues of race and disability

Rooted in Rights, “Race and Disability”

Institutionalized Racism: A Syllabus

Crowdsourced Disability Studies Readings on the Intersections of Disability & Race

National Disability Institute, Financial Inequality: Disability, Race, and Poverty in America (2019).

Centers for Disease Control & Prevention, “COVID-19 in Racial and Ethnic Minority Groups” (2020).

Where to donate: https://www.nylon.com/life/black-people-with-disabilities-donations-resources

Podcast Episode 25 – Disability, Education, and Religious Liberty

Disability History Association Podcast – Episode 25 (November 2020): Disability, Education, and Religious Liberty

Bruce Dierenfield and David Gerber discuss their new book, Disability Rights and Religious Liberty in Education: The Story of Zobrest v. Catalina Foothills School District.

Download mp3 file here.
Download pdf transcript here.

Bruce J. Dierenfield is a professor of history and director of the All-College Honors Program at Canisius College. He has authored numerous articles and books about race relations, civil rights, and religious liberty, including The Battle over School Prayer: How Engel v. Vitale Changed America (2007), which won the David J. Langum, Sr. Prize in American Legal History or Biography. David A. Gerber is a University at Buffalo Distinguished Professor of History Emeritus and director emeritus of the University at Buffalo Center for Disability Studies. He has published numerous essays and books about disability, immigration, and ethnicity. Professor Gerber was honored with the Annual Senior Scholar Award by the Society for Disability Studies in 2015, and he published an accompanying essay, “Disability Scholars as World Disrupters and Worldmakers,” in Disability Studies Quarterly in 2017.

Podcast Episode 24 – Parent Memoirs and Guidebooks

Disability History Association Podcast – Episode 24 (October 2020): Parent Memoirs and Guidebooks

Emer Lucey (University of Wisconsin-Madison) discusses her dissertation on memoirs and guidebooks by and for parents of children with disabilities.

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Download pdf transcript.

Emer Lucey is a PhD candidate in History of Science, Medicine, and Technology at the University of Wisconsin-Madison. Emer’s dissertation, “Constructing Childhood Disabilities,” examines the history of Down syndrome and autism as paradigmatic childhood developmental disabilities in the United States in the mid-to-late twentieth century. She can be reached via email at lucey@wisc.edu and found on twitter @emerlu.

Podcast Episode 23 – Telephony and Hearing Loss in Interwar Britain

Disability History Association Podcast – Episode 23 (September 2020): Telephony and Hearing Loss in Interwar Britain

Coreen McGuire (Durham University) discusses her award-winning work on technology and the categorization of disability.

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Download pdf transcript here.

Coreen references the following two images in her interview. The first image shows a mosaic of health-related posters. One poster, for example, is an advertisement for Chesterfield cigarettes featuring Santa Claus. Another poster shows a shirtless man flexing his muscles, and the text reads “Healthy Looks Can Hide Tuberculosis.” The second image zooms in on a particular poster. This poster has white text on a red background. The text repeats the words “I can’t breathe” twelve times. On the final line, the text fades away during the word “can’t.”

Coreen McGuire completed her PhD on the measurement of hearing loss in the British Telephone System at the University of Leeds in 2016. Following this, she took up a postdoctoral position at the University of Bristol, where she developed her research by exploring the measurement of respiratory disability as part of the Life of Breath Project. She has had six original articles published in peer-reviewed journals, contributed a spotlight piece for The Lancet, written two policy papers, and completed a monograph with Manchester University Press on the measurement of hearing loss and breathlessness. Its recent publication is a significant contribution to the history of medicine, science and technology studies, and disability history. One reviewer of the manuscript wrote: Measuring Difference, Numbering Normal ‘is deeply and imaginatively researched’ and ‘makes compelling connections between hearing and breathing, while emphasizing historical contingency in the interwar period, the biology and social context of the two, and the relationship between standardization, measurement, and disability’. Her first article in the British Journal of the History of Science was co-authored with Dr Jaipreet Virdi and discussed British scientist Dr Phyllis Kerridge’s contributions to science in Britain. Their collaboration has since developed into a full monograph project on Kerridge which has been put under contract with Johns Hopkins Press for publication in 2023. Coreen has won several notable awards, including the Scottish History Society Alasdair Ross Prize for archival research and the Disability History Association prize for outstanding article or book chapter. She will take up a three-year Lectureship in Twentieth-Century British history at Durham University in September 2020.

Podcast Episode 22 – Disability in African American Literature and History

Disability History Association Podcast – Episode 22 (August 2020): Disability in African American Literature and History

Delia Steverson (University of Florida) discusses Delores Phillips’s The Darkest Child and other intersections between disability and African American literature and history.

Download mp3 file here.
Download pdf transcript here.

Dr. Delia Steverson is an Assistant Professor of African American Literature at the University of Florida. Her book explores the nuances of how race and disability inform Black identity in 19th and 20th century African American literature. She has published in The Journal of American Culture and The South Carolina Review. Currently, she is developing a biography and a reader on the late Delores Phillips, poet and author of The Darkest Child.

Podcast Episode 21 – Accessibility at Wichita State University

Disability History Association Podcast – Episode 21 (July 2020): Accessibility at Wichita State University

Carolyn Speer and Jay Price (Wichita State University) discuss accessibility in the classroom and beyond.

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Download pdf transcript here.

Carolyn Speer is the Manager of Instructional Design and Access for Wichita State University.  She works with a campus team of accessibility and accommodations professionals to help ensure the accessibility of academic and other university content for all university constituents. She holds CPACC certification and a Ph.D. in adult education as well as Master’s degrees in history and political science. Her professional and personal interests come together in the area of museum accessibility, and she has studied this topic extensively in the last few years. Most recently, she was involved in the Solve for X: Accessibility exhibit at the Ulrich Museum of Art on the Wichita State Campus.

Now serving as department chair, Jay M. Price directs the Local and Community History Program at Wichita State University. His publications include Temples for a Modern God: Religious Architecture in Postwar America; Gateways to the Southwest: The Story of Arizona State Parks, and several local photo histories from Arcadia Publishing. His recent projects include a study ethnic entrepreneurship in Wichita; a graphic novel that tells the story of the community through the eyes of a longhorn named Luke, and a larger study of the local Latino community.